Grammy's Update Day 12

Ayden met His Creator @ 3:35 am this morning.  His spirit has been set free & he is whole & complete with Jesus now.  To try to explain how hard this is.....there are no words for.  I am so proud of Deidre & Chris.  They walked where no parent would would want to go & did so with beauty.  Deidre let Ayden go with as much style, strength, determination, and just overwhelming Mother's love as she demonstrated delivering him into this world.  Though the pain is excruciating, fierce love dictated the course.....much like Jesus' love for us.  It's hard to put that into just words because it can't communicate the beauty of it.  

We remained with Ayden until 6:30 this morning.

The bleeding just would not stop.  The surgery closed a main bleeder but his lung was damaged more than we understood, apparently bleeding right much on the surface.  Without the bleeding controlled additional surgery could not be considered.  The surgeons made this decision yesterday morning after my last update & we were summoned.  We were then presented with no other option aside from controlling how & when.  Our ride to DC was weighted only by the knowledge that everything was up to Deidre & Chris now, not why or what.  Second opinions were consulted from 2 additional hospitals.  

Ayden was born with ASD which is a far more riskier symptom of Hypoplastic Left Heart Syndrome.  This did not show up on the fetal echo cardiograms but was discovered after birth and was the reason for the first surgery on Sunday the 15th when he went into cardiac arrest.  There is a valve between the atriums to allow blood flow to the body and his clamped shut preventing this.  This is what the Cather was to do for him and instead we began with all the risks & complications that could have brought.  Originally we thought we were in the best scenario with this defect but this was not the case.  

His life, though brief, has touched so many.  Yesterday, there were 2200+++ of you praying for us.  He is just a tiny baby in a tiny town in the state of Virginia.  Amazing.  We are so thankful to each of you.  I hope your lives have been blessed, your intimacy with Jesus sweeter, so that in some way God has used Ayden in your lives just as He did in ours.  I will post arrangements when we know them.  Please know that we love you, are glad our lives were entwined with yours, & have felt your prayers.  I know many of you will want personal contact with us....but right now we might not be able to talk with you.  It's best not to call.... just yet.  Please do continue to pray for us, especially Deidre & Chris and the children.  Oh, for those of you who don't know us aside from this blog:  Aubrie is 10, Haley is 8, Elijah is 6, and Ainsley is 4.   

Trusting in Him to sustain & comfort us.

Gay & family

For you created my inmost being; you knit me together in my mother's womb. I praise you because I am fearfully and wonderfully made; your works are wonderful I know that full well.  My frame was not hidden from you when I was made in the secret place.  When I was woven together in the depths of the earth, your eyes saw my unformed body.  All the days ordained for me were written in your book before one of them came to be.  Psalm 139:13-16